Arlington, Va.—When Ricky Safer was diagnosed with primary sclerosing cholangitis 15 years ago, the first thing she did after her hepatologist appointment was to go online to learn more.
At the time, she said, “there was so much inaccurate information. Everything said you had five to 10 years to live after you got diagnosed.” Realizing there was a need for education and support for patients with primary sclerosing cholangitis (PSC) and recognizing the importance of raising