A study of children with celiac disease found that many patients stop visiting a doctor within 18 months of diagnosis, and half are lost to follow-up after three years. As a result, experts say, they may not be receiving adequate care for the condition.
“These patients aren’t coming back, and we don’t really know how they’re doing,” said Jocelyn Silvester, MD, PhD, the director of research for the celiac disease program at Boston Children’s Hospital. Dr.